Policy Papers

The Cost of Living While Caring: A brief report on the financial situation of family carers of people with dementia in Ireland (March 2023)

This report highlights the significant financial challenges faced by family carers of people with dementia and includes recommendations to address this. This publication results from a collaboration between The ASI and Family Carers Ireland (FCI) and follows an analysis of data provided by family carers of people with dementia surveyed as part of FCI’s The State of Caring 2022 report.

Author: The Alzheimer Society of Ireland in collaboration with Family Carers Ireland

Read the report here.


The Case for Dementia Clinical Nurse Specialists in Acute Settings in Ireland (June 2023)

This policy paper was commissioned by The Alzheimer Society of Ireland (ASI) to explore the case for further investment in Clinical Dementia Nurse Specialist roles in acute settings. The report provides insight into the value of this role and a thorough analysis of the enablers and barriers to implementation and recommendations for a national rollout.

Author: Dr. Liz Tully

Read the paper here.


Adult Safeguarding and People with Dementia in Nursing Homes (December 2022)

This report on safeguarding the human rights of people with dementia who live in residential care was commissioned by the Irish Dementia Working Group. It provides insights and recommendations into ways to uphold the rights of people with dementia as their care needs progress and they move to long term care.

Author: Dr Sarah Donnelly, Assistant Professor of Social Work, School of Social Policy, Social Work and Social Justice, UCD

Read the paper here.


Case for the Inclusion of Dementia in Chronic Disease Management Programmes in Ireland (2021)

This policy paper was commissioned by the Alzheimer Society of Ireland (ASI) to investigate the feasibility of including dementia in a revised chronic disease management programme for GPs in the future.  It set out to explore what it would mean for a range of key stakeholders, if dementia were to be categorised as a chronic disease. What are the likely benefits and risks for the person, family caregivers and GPs and what are the potential barriers and facilitators to having dementia included in a revised GP contract?  How might this framing of dementia build on and inform policy developments currently underway through the National Dementia Office to implement the Irish National Dementia strategy?

Authors: Prof Suzanne Cahill & Dr Maria Pierce

Read the Policy Paper here.

Read a Plain Language Summary here.


Dementia & Loneliness (2019)

Policy Position Paper commissioned by ASI and undertaken by UCC

This policy position paper ‘Dementia and Loneliness’ reflects the experiences of loneliness for people living with dementia, how loneliness can be attributed to a lack of supports and services, and the public awareness and understanding of dementia.

Read the Report here.


A National Dementia Registry for Ireland (2016)

This report, commissioned under The Alzheimer Society of Ireland’s expert policy series, provides much needed information on the feasibility of developing a dementia registry within the Irish context.

Policy Report commissioned by ASI and undertaken by DCU

Authors: Dr Louise Hopper, Suzanne Hughes, Prof Teresa Burke, Dr Kate Irving

Read the full version here.

Read the accessible version here.


Implementing Policy for Dementia Care in Ireland: The Time for Action is Now (2007)

Commissioned by ASI and undertaken by National University of Galway

Author: Prof Eamonn O’Shea, Irish Centre of Social Gerontology

Read the Report here.

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