Self-Advocacy Groups

Irish Dementia Working Group

The Irish Dementia Working Group (IDWG) was set up in 2013. It is an advocacy group of people who have been diagnosed with dementia.  The group is an independent campaigning voice for the lived experience with 30 active members throughout Ireland.

The group meet to share experiences and highlight issues that are important to them. It is a space to do something proactive and positive and bring hope and purpose to life after diagnosis. The IDWG is working to improve life for people living with dementia throughout Ireland.

The group is supported by The Alzheimer Society of Ireland, and their work is overseen by a Steering Group comprised of six people living with dementia.  The IDWG meets in person and online and you can find out more about the IDWG here or by reading our information flyer

Dementia Carers Campaign Network

The Dementia Carers Campaign Network (DCCN) is an advocacy group for those who have experience caring for a loved one with dementia.  The DCCN was formed in 2013 and it aims to represent, raise awareness and campaign on the distinct needs of people who care for someone with dementia.

The DCCN is open to anyone in the Republic of Ireland who has experience caring for someone with dementia. It is a national campaigning group, raising awareness of issues facing families affected by dementia and lobbying for policy change.

The group is supported by The Alzheimer Society of Ireland and their work is overseen by a Committee of 10 family cares and supporters. You can about the DCCN  here or reading our information flyer

Further information

If you would like to learn more about joining the Irish Dementia Working Group or the Dementia Carers Campaign Network please e-mail [email protected] or phone 01 2073800.

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