About TeamUp For Dementia Research
What is TeamUp For Dementia Research?
TeamUp For Dementia Research is a service where people living with dementia and their families can register their interest in participating in dementia research. It connects you with researchers who are conducting studies in the area of dementia (e.g. prevention, diagnosis, treatment, care, cure).
The goals of TeamUp For Dementia Research are:
- To make research more accessible to people living with dementia and their families
- To enhance dementia research in Ireland
- To ensure people living with dementia and their families have their voices heard in research
Why we set up TeamUp For Dementia Research
TeamUp For Dementia Research was set up for a number of reasons:
- In Ireland there is currently no streamlined and inclusive way for people living with dementia and their families to express their interest in taking part in Dementia Research.
- Finding participants is a big challenge in Dementia Research which means that it is more expensive, takes longer and may not be as relevant.
- Participating in research projects can benefit people living with dementia and their families. We want everyone to have the option of taking part if they wish.
When I take part in research I feel recognised as a person who is capable of doing things. I feel valued and that my self esteem is boosted. I enjoy talking about my feelings and experiences. I learn from research, it’s something to do, and I find it enjoyable too
Kathleen Quinlan, Living with Dementia
Why is Dementia Research Important?
There are about 64,000 people living with dementia in Ireland and 30 people being diagnosed each day. Although most people who develop dementia are over 65 years old, it is not ‘a normal part’ of getting older.
There are many different types of dementia. The most common types of dementia include Alzheimer’s disease, vascular dementia, dementia with Lewy bodies and Frontotemporal dementia. However, there are over 400 types of dementia and research into all types is really important.
Research is essential to help understand what causes dementia, develop effective treatments, improve care, create new interventions and hopefully one day find a cure.
For research to progress, more people living with dementia and their families are needed to take part in research studies. TeamUp For Dementia Research is a new service created by The Alzheimer Society of Ireland in collaboration with Dementia Research Network Ireland.
I feel that research is the core of change, which to me, offers immense hope and is so reassuring to carers like me
Máire-Anne Doyle, Dementia Carers Campaign Network
Why Sign Up for TeamUp For Dementia Research?
Taking part in research not only helps others, but it can have benefits for you too. Many people find being involved in research a rewarding and enjoyable experience that is of benefit to them.
By signing up to TeamUp For Dementia Research, you increase your chances of taking part in ethically approved dementia research that may benefit you and others in the future
What types of research can I participate in?
There are many different types of research. Some might be a one-off interview or survey, while other research projects might involve taking part in an intervention (e.g. swimming group, art class, music therapy) over a period of time or participating in a clinical trial.
Different research studies have different aims. Some might look at ways of preventing dementia or improving diagnosis. Others might look at ways to improve standards in care homes, community supports or how to enhance quality of life.
If you match with a specific project, you will be told about the opportunity to participate. You can then decide if you would like to be put in touch with the research team or not.